Chair
Elaine Whitworth, MSW
(919) 684-6464 ext 4
Secretary
Marcia Wright
(919) 346-2510
Upcoming Events
September 30 through October 3
SCDAA annual conference in Orlando, FL http://www.scdaaconvention.com
October 24th -
Bridges Pointe Foundation http://www.bridgespointe.org/Home_Page.html
"Sickle Cell Patient Empowerment Day "
See the Agenda HERE
LINKS
Sickle Cell info in North Carolina:
Greensboro (Piedmont Health Services)
Fayetteville (Operation Sickle Cell)
Jacksonville (SCDAA-Eastern North Carolina Chapter)
Charlotte (Crescent Health Institute)
NC Sickle Cell Syndrome Program
Sickle Cell Disease Association of America
BeSickleSmart.com (Great resource about Iron Overload)
North Carolina Sickle Cell Consortium
Please come back to visit us often, as our website will be updated often.
Welcome to Our Website!
The North Carolina Sickle Cell Consortium is a state-wide alliance of people affected by and interested in sickle cell disease: patients, families, friends, researchers, physicians, nurses, social workers, hospitals and clinics. The four North Carolina community-based sickle cell organizations (Charlotte, Fayetteville, Greenville, and Jacksonville) are charter members.
The group has met for nearly 20 years to identify challenges, needs, and opportunities related to living with and providing care for sickle cell.
As a result of this group’s work, North Carolina instituted universal newborn screening, which has now expanded to include nearly 50 conditions that can affect an infant’s health and development.
When do We Meet?
Member Meeting dates-
Members of the NC Sickle Cell Consortium
meet on the third Tuesday (11am to 2pm) on the following
months: February, May, August, November in Durham (more detail to be
announced).