The North Carolina Sickle Cell Consortium is a state-wide alliance of people affected by and interested in sickle cell disease:  patients, families, friends, researchers, physicians, nurses, social workers, hospitals and clinics.  The four North Carolina community-based sickle cell organizations (Charlotte, Fayetteville, Greenville, and Jacksonville) are charter members.

 The group has met for nearly 20 years to identify challenges, needs, and opportunities related to living with and providing care for sickle cell.

As a result of this group’s work, North Carolina instituted universal newborn screening, which has now expanded to include nearly 50 conditions that can affect an infant’s health and development.